The Heart and Soul Family: Musician in the making

Wednesday, December 31, 2008

Musician in the making

I am so blessed to have this beautiful little girl as my daughter! :-)

7 comments:

**Colleen** said...: That is so cute! It is a little Hannah Montana in training! Have a happy new year with your adorable little rock star =); December 31, 2008 at 3:33 PM
The Watson Family said...: Sending Big WISHES for a Very Healthy, Blessed, & Happy 2009, filled with Love & Many Memories to cherish!

Love & Hugs,
Nicole Watson

www.caringbridge.org/visit/maddisonwatson; January 1, 2009 at 12:11 PM
mina said...: Very cute. Happy New Year!; January 1, 2009 at 7:10 PM
Kathy said...: ahhh...yep. She's a keeper!!!
Happy New Year!!; January 1, 2009 at 7:42 PM
Unknown said...: AAHHH What a cutie pie.

Happy New Year!

Karen; January 1, 2009 at 11:43 PM
The Portas said...: That is absolutely adorable. You ARE so blessed....and so is she! You're an awesome mama.

Happy New Year to you and your family! oxox; January 2, 2009 at 9:01 AM
Dina said...: I hadn't checked in on your beautiful little girl in awhile - she certainly is growing and thriving and is just a cutie! We are overrun with Dora stuff here too.
I wish you a happy and healthy New Year.

Dina - Jillian's mom; January 2, 2009 at 11:58 AM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Wednesday, December 31, 2008

Musician in the making

7 comments: