The Heart and Soul Family: Bowling

Saturday, February 27, 2010

Bowling

This morning we took an unexpected trip to the bowling alley! Arianna had a blast. I'm beginning to realize how grown up she is becoming when it comes to these kind of outtings. The other day at the zoo I took her stroller because she normally walks and then asks to be held. Not this time...she walked/ran the entire time. Then today she actually bowled her entire game when she used to only do about 5 frames and be done with it. I'm so excited about doing these fun things with her and look forward to doing many more. :)

Arianna & Grams

Bryce & Me

Arianna & Nanny

Arianna & Poppy

Love my family!

Half way through it turned into cosmic bowling!

Grams & the grandkids!

2 comments:

Unknown said...: Bowling is so much fun especially when it is with family. We went last weekend and we had a blast. I am so glad everyone had a great time. Enjoy the rest of your weekend.; February 27, 2010 at 5:22 PM
The Portas said...: Great photos! Isn't it fun doing more grown-up kid stuff? I think that is part of the fun in this stage, too.

I hope your pregnancy is going well and that the contractions are holding off. I think of you often!; March 2, 2010 at 7:02 AM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Saturday, February 27, 2010

Bowling

2 comments: