The Heart and Soul Family: 4th of July!

Thursday, July 8, 2010

4th of July!

I was finally feeling good enough to take the family to church this Sunday. We are in the process of looking for a new church and I think we might have found one! Arianna enjoyed the children's class which had about 8 kids. That is the biggest classroom size she has ever been in. It did take two attempts to stay in the class but she did and seemed to really enjoy it! After church they were offering hot dogs and hamburgers which was nice to feed the family before even leaving church. :) Plus...Arianna got some time to play with her BFF Alyssa!

After church we went home and baked a flag cake while Devin took his nap. Not bad for our first attempt.

Then we went to my moms for dinner before the fireworks.

Arianna & Poppy

1 comment:

Wendy said...: Hi Vanessa,

Just had to stop by and say, "Congratulations!" I'm sorry I'm so late, but I haven't been around to everyone's sites for quite a while. I was so happy to see your adorable new baby boy, and to read that everything is going well. Arianna looks like such a proud and loving big sister!

Give both of your beautiful kids a big hug from us, and try to get some rest!!!

Lots of Love & Prayers,

Wendy (& Emma, too!); July 10, 2010 at 2:21 PM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Thursday, July 8, 2010

4th of July!

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