Cardiology Appointment - Feb 2011

Elliot the therapy dog

She has never liked the blood pressure check

Waiting for the doctors

Dr. Klewer interacting with Arianna.

We LOVE Dr. Klewer!

Annual echo

Conclusion:

Arianna's echo looked good but her right ventricle is definitely larger than last time. Dr. Klewer feels it's time to go ahead and get a cardiac MRI study to check her right ventricle pressures. One of two things will come out of this. (1) The right ventricle pressure will be below the threshold (something like 170) and we will continue with our 6 month follow-ups with a repeat MRI probably in a year. (2) The right ventricle pressure will be close to or above the allowed threshold and we will have to have surgery. The surgery would require a pulmonary valve conduit to be placed. We are still waiting on the date for the MRI but it will be either the end of July or beginning of August. If surgery is needed then we will most likely get it done before winter to keep her out the hospital during cold/flu season.

Road to recovery

Arianna took her last dose of the Tamiflu on Friday. She still has a runny nose which shows no sign of letting up. Thankfully the benadryl really helps with that.

I lost my voice for a few days, which I'm sure Robert wasn't too upset about. lol! I'm almost 100% back to my healthy self! :)

My family left last Thursday and it's been a quite house ever since. I SO miss having my cousin here but she promised to come back for Thanksgiving! :)

Today I let Arianna spend a few hours at my girlfriends house while I went to an appointment. Arianna had a blast! Not once did she ask for me. :(

She came home about 3pm and played for another 2 hours before she started acting extremely tired. By 5:15 she was falling asleep so I stuck her in the bath. That wasn't the best idea, she just sleep through the entire bath. Normally I don't let her nap during the day because she will stay up till midnight. Well there was no keeping this little one up. I thought she would get up about 7pm ready to party but she stayed asleep.

About 8pm she woke up saying she was hungry so I fed her some yogurt. The entire time I was feeding her her eyes were closed. I got a little worried because this is not her norm but when I checked her satsthey were running in the high 90's. Guess she just needed some extra sleep.

She is still getting blue hands and feet every now and then. The last time was yesterday during her therapy session. It wasn't even that cold in my house and she was standing up. Normally it happens after the pool but she was bone dry. Hmmm...not sure what to think of that. I have her scheduled to see her pediatrician next Friday at the new clinic so I'll see what she thinks.

So all this thinking about her heart made me realize we see the cardiologist next month. Every time we get closer to that appointment I get butterflies in my stomach. I'll try to forget about it for the next few weeks. Besdies we have to get through the pulmonology appointment first which is on July 16th.

Well I guess thats about it. I know this is a pictureless post so I'll take some pictures soon.

Quick Update

I have rescheduled Arianna’s cardiology appointment for Feb. 27th. I also got a consult for one of the other peds in our office. I’m hoping she is more helpful then our current pediatrician. Please keep our dear friend Emma in your prayers that day. She is having her 2nd open heart surgery.


Our next appointment is on the 20th with the geneticist. Don’t know how helpful this appointment will be but at least he’ll have some information for the next DiGeorge kid that comes along.