The Heart and Soul Family: lab corps

Tuesday, April 1, 2008

Are you serious?!?!

Okay, I know hate is a strong word but I really do hate Lab Corp. I talked to the immunology nurse again today and she spoke with the manager at Lab Corp who said Arianna's labs are no where to be found. How do you draw 3 viles of blood from a child, or anyone for that matter, and LOSE the viles. If you can't tell...I am pissed!!! I told her I was sick of Lab Corp and asked if we could go somewhere else. I talked to my insurance company and they said all I need is a prior authorization to have them drawn at the hospital. So the wonderful immunology nurse is putting that together and we're hoping this means we can go to the hospital from now on. I'm hoping we can have this approved before next Tuesday since Arianna will be there for her CT's and scope. It's just not right having to subject a child to numberous blood draws. UGH!

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Tuesday, April 1, 2008

Are you serious?!?!