This weekend I was trying to figure out how many words Arianna can sign. I started a list and was amazed that she can sign 58 words!!!! It just blows my mind when I really sit here and think about it. She speaks less than 10 words which you really can't tell unless your used to her language, but this is still good. I'm having to learn new signs everyday to keep up with this little girl. I honestly didn't think she would be signing this much but she is so eager to learn and picks up a new sign weekly. It's so cute cause when your talking to her and she's having a hard time understanding what your saying, she will look at your hands and wait for the sign. It just clicks better with her when she sees the sign. We got 9 more Signing Time cd's so these will really help with her signing as well.
This morning we went to my friends house for a playdate with her daughter. The girls had a blast! Arianna fell off a playgym and hurt her little neck, but after some Tylenol and her paci she was out as soon as we got in the car. I've been trying to get some more video of her being crazy but have yet to be successful since she stops everything she's doing when I bring out the camera. Hope you all are doing well.
Showing posts with label signing. Show all posts
Showing posts with label signing. Show all posts
Monday, July 7, 2008
Friday, March 28, 2008
"I love you"
The highlight of my day yesterday was when Arianna tried to sign "I love you". I was crying and the whole nine yards. I can't wait untill the day that I hear her precious little voice tell me she loves me. Then right now we were sitting at the table...attempting to eat..and she looked at me with the cutest little eyes and signed "I love you". She just melts my heart!
Speaking of signing she has picked up another new sign, "no", which I'm hoping she won't use all the time. And come to think of it she signed "outside" for the first time this week as well. I am always amazed when I see her signing her things, she is so smart!
I'm getting a little nervous...tomorrow I will be heading to Phoenix for an all day meeting for the support group. I am getting the opportunity to meet with some really great people who oversee our program but this will be the first time I am this far away from Arianna. I am leaving her in good care but I'm still getting nervous. It's one thing to leave her with family for a few hours but to actually be going out of town is a little different. I know everything will be fine but I can't help getting a little nervous. Well I better go, I'm staying at my moms so I can get an early start in the morning.
Speaking of signing she has picked up another new sign, "no", which I'm hoping she won't use all the time. And come to think of it she signed "outside" for the first time this week as well. I am always amazed when I see her signing her things, she is so smart!
I'm getting a little nervous...tomorrow I will be heading to Phoenix for an all day meeting for the support group. I am getting the opportunity to meet with some really great people who oversee our program but this will be the first time I am this far away from Arianna. I am leaving her in good care but I'm still getting nervous. It's one thing to leave her with family for a few hours but to actually be going out of town is a little different. I know everything will be fine but I can't help getting a little nervous. Well I better go, I'm staying at my moms so I can get an early start in the morning.
Wednesday, March 5, 2008
Another day...
Not too much going on around here. I had a rough day yesterday but feeling a lot better today. I guess being a stay at home mom can get to you at times and when your child does not want anyone but you ALL the time you don’t get much of a break. Don’t get me wrong I LOVE being home with Arianna but I think I need to start getting some mommy time so I don’t go nuts.
Arianna did have a little accident yesterday and hit her eye on the computer desk. She got the sharp metal edge and put a nice gash in her eyebrow. Poor baby she was bleeding like crazy and kind of freaked me out. I think this is her first official boo boo..well besides the huge scar across her chest. Here’s a picture of her today, sporting her bandaid and her big smile under that paci!
So for those of you who remember my comment about Arianna sleeping with us till she’s 15, well I decided to try and get her to sleep in her bed….but here’s the catch…it’s really an exstension of our bed. She has one of those 3-1 cribs, which turn into a toddler bed/daybed, then a full-size head/foot board. REALLY NICE! So I decided to ask Robert to convert the crib into a daybed and push it right up against our bed. It’s actually the same height with just a small gap in between beds so I just stuffed a blanket to fill that up. So last night was the first night sleeping this way and she stayed in her bed the whole night. She woke up a few times, rolled over, felt my face then went back to sleep. It was so nice not being kicked in the head or stomach all night. She is a very wild sleeper and normally ends up with her head at the opposite end, which she did last night. I know technically she is still sleeping with us but it’s a step out of our bed.
Today we were suppose to have speech therapy but after careful consideration we have decided to look for a different type of therapy. We still have Janet, Arianna’s OT, which works a lot with her feeding and oral motor and Arianna has shown a huge improvement in these areas. She has had 5 days of excellent eating. She is totally into feeding her self with utensils...it's the cutest/messiest thing ever! They are still looking for a new therapist and don’t know how long it will take to find another one. Even with Arianna’s signing the communication barrier is becoming more of an issue for us. I am trying my best to learn as many signs as I can so we don’t have the frustrations. Guess I need to start buying the Signing Time videos for her since she knows all the signs from the Baby Signing Time videos. It was so cute she signed “baby doll” today. This is good to see her putting the two signs together. (Hey Pam, how did Madison become so good with her signing? I’m open to suggestions!)
I guess that’s it for us. She just laid down for her afternoon nap and I’m seriously thinking about joining, her but I have way too much to do. The only thing going on this week is our appointment with the immunologist…yuck..we’re always given a lab slip when we leave his office. ☹ To be honest, I forgot which tests need to be done. Oh well I’ll find out on Friday. Hey Kathy…ever get Isaac’s labs drawn? Welll better get off of here. Thanks for checking up on us!
Arianna did have a little accident yesterday and hit her eye on the computer desk. She got the sharp metal edge and put a nice gash in her eyebrow. Poor baby she was bleeding like crazy and kind of freaked me out. I think this is her first official boo boo..well besides the huge scar across her chest. Here’s a picture of her today, sporting her bandaid and her big smile under that paci!
So for those of you who remember my comment about Arianna sleeping with us till she’s 15, well I decided to try and get her to sleep in her bed….but here’s the catch…it’s really an exstension of our bed. She has one of those 3-1 cribs, which turn into a toddler bed/daybed, then a full-size head/foot board. REALLY NICE! So I decided to ask Robert to convert the crib into a daybed and push it right up against our bed. It’s actually the same height with just a small gap in between beds so I just stuffed a blanket to fill that up. So last night was the first night sleeping this way and she stayed in her bed the whole night. She woke up a few times, rolled over, felt my face then went back to sleep. It was so nice not being kicked in the head or stomach all night. She is a very wild sleeper and normally ends up with her head at the opposite end, which she did last night. I know technically she is still sleeping with us but it’s a step out of our bed.
Today we were suppose to have speech therapy but after careful consideration we have decided to look for a different type of therapy. We still have Janet, Arianna’s OT, which works a lot with her feeding and oral motor and Arianna has shown a huge improvement in these areas. She has had 5 days of excellent eating. She is totally into feeding her self with utensils...it's the cutest/messiest thing ever! They are still looking for a new therapist and don’t know how long it will take to find another one. Even with Arianna’s signing the communication barrier is becoming more of an issue for us. I am trying my best to learn as many signs as I can so we don’t have the frustrations. Guess I need to start buying the Signing Time videos for her since she knows all the signs from the Baby Signing Time videos. It was so cute she signed “baby doll” today. This is good to see her putting the two signs together. (Hey Pam, how did Madison become so good with her signing? I’m open to suggestions!)
I guess that’s it for us. She just laid down for her afternoon nap and I’m seriously thinking about joining, her but I have way too much to do. The only thing going on this week is our appointment with the immunologist…yuck..we’re always given a lab slip when we leave his office. ☹ To be honest, I forgot which tests need to be done. Oh well I’ll find out on Friday. Hey Kathy…ever get Isaac’s labs drawn? Welll better get off of here. Thanks for checking up on us!
Friday, December 28, 2007
Signing, Signing, and More Signing!
So lately Arianna has really been using her signing to communicate when she is hungry. Every morning she wakes up and the first thing she does is sign 'eat'. It is so cute, I know she is hungry cause she no longer wakes for a bottle at night. Some days she will eat scrambled eggs for breakfast but sometimes she just wants her milk. I have been working on signing 'milk' so she can start communicating exactly what it is she wants, 'milk' or 'food'. So this morning I sat her in the highchair and gave her scrambled eggs. Then she started making noise to get my attention because I was making myself breakfast and when I looked she perfectly signed 'milk'. I made a huge deal about it and gave her the milk. I am just so proud of her and when she does a new sign I just get so excited.
Speaking of food, we went over to my Nana's this afternoon and she was hanging out with my sister eating some gerber puffs. I figured since she showed interest in eating that I would cut up a hotdog since I haven't tried that in awhile. Not expecting her to eat it I handed it to her Aunt and told her to try and see if she would eat it. I was picking up around the house and Aunt Lissa told me she was eating so I figured I would leave them alone to eat. Arianna got a little fussy so Aunt Lissa put her on the floor while she continued to feed her. About 10 minutes later she told me Arianna ate the entire hotdog, which was really half a hotdog, but still this is huge! I just continue to thank God for all the baby steps she is doing
So after all the excitement at Nana's we had to run to the grocery store. As we were shopping my sister noticed she was signing 'eat'. We were by the baby isle so I opened a box of gerber cookies since she has been into those again. We went down the snack isle she must have noticed some of the snacks I give her and started signing 'eat' some more. Her is a child that has had eating issues for months and for some reason she sees all the food and wants to eat. So you better believe I open a bag of cheetos and let her eat while we finish shopping. I am just so excited today with all her signing and eating. She hasn't gained any weight this month but I'm hoping she will start to show more interest like today. We have 2 weeks before going back to the GI doctor for a weight check, so maybe we can get a few ounces on her before then.
Okay, so on to the medical side of things. I missed the call from the neurologist that I have been waiting on all week. He did leave a message saying he got my message that I received the MRI results and wanted to go over them. He confirmed she does NOT have a tethered chord and said the butterfly vertebra is a bony anomaly associated with the 22q Deletion syndrome. He said if I have any questions to call him back. I thought to myself, "HELLO, I have tons of questions." I left a message and just got a call from the nurse saying he is out until next week. So hopefully we can talk next week and get a better idea of what they saw in the MRI.
I also wanted to mention if you have a child with a congenital heart defect or with 22q deletion and would like your childs link on the blog just let me know. I am trying to get a list of heart and 22q kids so other families can find each other for support. I know alot of our 22q kids have CHDs so let me know which way you would like to be listed.
Till next time!
Speaking of food, we went over to my Nana's this afternoon and she was hanging out with my sister eating some gerber puffs. I figured since she showed interest in eating that I would cut up a hotdog since I haven't tried that in awhile. Not expecting her to eat it I handed it to her Aunt and told her to try and see if she would eat it. I was picking up around the house and Aunt Lissa told me she was eating so I figured I would leave them alone to eat. Arianna got a little fussy so Aunt Lissa put her on the floor while she continued to feed her. About 10 minutes later she told me Arianna ate the entire hotdog, which was really half a hotdog, but still this is huge! I just continue to thank God for all the baby steps she is doing
So after all the excitement at Nana's we had to run to the grocery store. As we were shopping my sister noticed she was signing 'eat'. We were by the baby isle so I opened a box of gerber cookies since she has been into those again. We went down the snack isle she must have noticed some of the snacks I give her and started signing 'eat' some more. Her is a child that has had eating issues for months and for some reason she sees all the food and wants to eat. So you better believe I open a bag of cheetos and let her eat while we finish shopping. I am just so excited today with all her signing and eating. She hasn't gained any weight this month but I'm hoping she will start to show more interest like today. We have 2 weeks before going back to the GI doctor for a weight check, so maybe we can get a few ounces on her before then.
Okay, so on to the medical side of things. I missed the call from the neurologist that I have been waiting on all week. He did leave a message saying he got my message that I received the MRI results and wanted to go over them. He confirmed she does NOT have a tethered chord and said the butterfly vertebra is a bony anomaly associated with the 22q Deletion syndrome. He said if I have any questions to call him back. I thought to myself, "HELLO, I have tons of questions." I left a message and just got a call from the nurse saying he is out until next week. So hopefully we can talk next week and get a better idea of what they saw in the MRI.
I also wanted to mention if you have a child with a congenital heart defect or with 22q deletion and would like your childs link on the blog just let me know. I am trying to get a list of heart and 22q kids so other families can find each other for support. I know alot of our 22q kids have CHDs so let me know which way you would like to be listed.
Till next time!
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