The Heart and Soul Family: wretching

Saturday, January 17, 2009

Good night

This whole bedtime routine is really starting to come together. Now we lay in bed, read a book, then go straight to bed. I love it!

Last night was the same way expect for going to bed a little late because she slept in yesterday.

She only had one wretching episode but didn't throw up....AND.....slept in her bed all night long! This is the 3rd night this week she has slept in her bed the entire night. The other nights she did come to bed with us but it wasn't till 4 or 5 in the morning so that is really good. I can't believe out of no where she just starts sleeping by herself. I'm getting so excited I want to go decorate her room right now. Of course I need to go buy a few things but I'm so excited! I'm still nervous to think about putting her in her own room but she is becoming such a big girl I know this is something I need to do for her.

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Saturday, January 17, 2009

Good night