The Heart and Soul Family: The Story of Brandon & Thomas

Tuesday, March 25, 2008

The Story of Brandon & Thomas

I have met an amazing heart mom, via the internet, who helped start the organization CHIfund

Not only is she activly involved but her 15 year old son, Brandon, who was born with several congenital heart defects, is just as involved. He has created a video, along with his best friend Thomas, in hopes that his story will help and encourage other families and children effected by heart disease.

The Story of Brandon & Thomas

1 comment:

The Portas said...: Oh my goodness, that video and story is so touching! Thanks so much for sharing this. What an inspiration those boys are.; March 26, 2008 at 7:33 AM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Tuesday, March 25, 2008

The Story of Brandon & Thomas

1 comment: