The Heart and Soul Family: She eats!!!!

Friday, September 26, 2008

She eats!!!!

I just got home and Robert told me Arianna ate a quarter of a biscuit!!!! I can't believe it...this girl is not only eating more but eating bread?!?!? Seriously, why didn't I take that paci away a LONG time ago?!?! This morning she ate Cream of Wheat and she never eats breakfast. I hope this continues.

4 comments:

Tina:0) said...: Go Arianna!! Keep it up, girl! There are sooo many good things out there.

Hope she continues to try more!; September 26, 2008 at 6:03 PM
mina said...: Who would have even thought that the paci may be associated with so many things?! That's great to know that Arianna is wanting to eat more, and even saying more. It's also good news about the ankle pronation not being an issue right now. I loved reading your last post, but yes, it was a very sad ending. Sorry to hear about your little heart friend, but good to know that you are able to make such a difference in your community. Keep up the good work, Vanessa!; September 27, 2008 at 11:50 AM
Pam said...: I am so jealous! Madison was without hers for 2 months and it was horrible for all of us. After not sleeping through the night for 2 months I finally one night gave it back to her. What a whimp I am.
I am so proud of Arianna. What a big girl and what positive results you are seeing. Way to go!
Pam and Madison
www.caringbridge.org/visit/madison; September 27, 2008 at 6:14 PM
The Portas said...: YESSSss! Awesome news! Once bread is tolerated, you have endless calorie options to put ON the bread. Great news!!; September 29, 2008 at 6:58 AM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Friday, September 26, 2008

She eats!!!!

4 comments: