The Heart and Soul Family: Bracelets & Bugs

Sunday, October 5, 2008

Bracelets & Bugs

Arianan got some really pretty bracelets and a bunch of bugs (butterflies). She is SO excited and has been playing with them for the past 30 minutes. Just thought I would share some pictures and a quick video.

Make an on-line slideshow at www.OneTrueMedia.com

4 comments:

jencooper said...: She is getting so big!! She is starting to look so grown up. She is so adorable.

Thanks for sharing the new pictures!

<3,
Jennifer; October 6, 2008 at 7:24 PM
Unknown said...: What a little princess, they grow up so fast. She is so cute.

Thanks Karen; October 6, 2008 at 10:15 PM
The Portas said...: Bracelets and bugs...what a perfect combination of something girly and something tomboy-ish. She is just so darn cute.; October 7, 2008 at 6:00 AM
Mami Adame said...: OMGoodness! She is soooo cute! She looks so grown up. I love seeing the videos. I've noticed hers and Angelina's hair looks a lot alike.; October 9, 2008 at 1:51 AM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Sunday, October 5, 2008

Bracelets & Bugs

4 comments: