The Heart and Soul Family: Fun at the park!

Sunday, November 16, 2008

Fun at the park!

Since we are isolated again we decided to head out to the park for some fun outdoor time.

Ari with her Daddy

Sitting in a tree for the first time. She even ate a few french fries while she was up there. It was so funny cause she kept asking my mom to put her up there and of course my mom wasn't going to say no. LOL! You need to realize where she is sitting is about 6 feet off the ground. :)

Ari with her Mommy!

Ari touching the leaves. She loves when her Daddy lifts her up like that.

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7 comments:

Unknown said...: Boy she is a little dare devel isn't she. Cute pictures sounds like everyone had a nice time.; November 16, 2008 at 9:16 PM
Tina:0) said...: Its so nice you live in a warmer climate so that you are able to get her outside. You'd really be seclued here - snow again today! Its only in the mid to upper 30's!

You all look so happy! Glad you were able to 'break out' for the day! Give her big hugs from us!; November 17, 2008 at 5:33 AM
**Colleen** said...: Wow, great pics! She is a fearless little gal isn't she =); November 17, 2008 at 11:01 AM
The Portas said...: What a cute little jumping bean. :) She's just the sweetest. It looks like she's daring, too! Wanting to sit high in the tree. I'm happy to see you guys having a fun time together.; November 17, 2008 at 12:18 PM
Kathy said...: Oh..you're such a good mommy! I NEVER take Isaac to the park. He doesn't like the sun or wind...so, he'd just be mad the whole time!

She's so darn cute!!!

Smooch on her lots for us!
kathy; November 17, 2008 at 8:27 PM
jencooper said...: "Spinning, spinning.." So cute! I love her jumping everywhere! She is so adorable!!

I am so happy that you were able to spend some time at the park. How fun!

<3,
Jennifer; November 18, 2008 at 5:00 PM
mina said...: Oooo, I'm jealous, looks like you hadso much fun, with such perfect weather! It was in the 20s here this morning, brrrr. Tina jinxed me!; November 19, 2008 at 1:59 PM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Sunday, November 16, 2008

Fun at the park!

7 comments: