The Heart and Soul Family: Merry Christmas!

Friday, December 26, 2008

Merry Christmas!

Scroll to the bottom and stop the music first.

Make an on-line slide show at www.OneTrueMedia.com

4 comments:

**Colleen** said...: OMG -- She looks so beautiful! I love that dress! Looks like Santa was very generous at your house! I bet the kids loved it! Many warm wishes for the New Year!; December 27, 2008 at 5:50 PM
Unknown said...: Lookas like everyone had a very nice Christmas. Love the video she is so cute in that dress.

Karen; December 28, 2008 at 9:55 AM
jencooper said...: She is adorable!! I love her dress. I hope that you had a terrific Christmas!

<3,
Jennifer; December 28, 2008 at 2:55 PM
The Portas said...: The pics are so much fun...I love the new slide! What a fun Christmas. She is just so cute, Vanessa. That sweet little face is the sweetest. I hope you guys are having a good week! oxoxo; December 30, 2008 at 11:36 AM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Friday, December 26, 2008

Merry Christmas!

4 comments: