The Heart and Soul Family

Friday, January 16, 2009

For the past 3 days Arianna has been doing alot of wretching. She has thrown up a few times but today was the ultimate. Right now we are in the middle of washing our bedding right now. Poor thing was just sitting there and the wretching started and the vomit came right after. She was covered and was crying, I felt so bad. So we had our 2nd bath today and she is just fine. She's throwing up alot of phelgm so I hope that will help with her coughing at night. Sometimes throwing up is a good thing with these kids no matter how much we hate to watch them go through it.

2 comments:

Tina:0) said...: Poor baby:0( Hope she's feeling better soon!

Big hugs from us!; January 16, 2009 at 5:17 PM
Anderson Family said...: Again? I just want to love her (without Kira course).
And who knew that was the way to spell phelgm? Medical terms...tricky, tricky!; January 16, 2009 at 5:31 PM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Friday, January 16, 2009

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