The Heart and Soul Family: Holter Monitor

Thursday, August 27, 2009

Holter Monitor

We got it on! Just have to make it another 16 hours till it comes off. She is actually fine wearing it as long as I don't take her shirt off but I had to get at least one picture.

So thanks to a wonderful heart mom in our Mended Little Hearts group I have Arianna wearing a monkey leash to hold her Holter monitor. :) It works like a charm!

Photo and video editing at www.OneTrueMedia.com

Arianna is helping me make NICU care bags for the heart families!

I just love her SO much!

So the tech today mentioned how much she loved the monkey backpack and how she wished she had some for her pediatric patients....so we our going out right now to buy some backpacks for the cardiology clinic at the hospital. It's working so great for us I want every family to have the option of using this for their child. So I gotta run...

2 comments:

The Portas said...: The monkey backpack is a great idea!! Arianna looks great with it on (what wouldn't look great on that cutie pie, though, right?).

How wonderful that you reach out to other parents like you do. You're awesome!

Have a great weekend! xo; August 28, 2009 at 6:24 AM
Unknown said...: Vanessa You are such a sweet person doing all of this for other parents so they can have the same thing.

I love the Monkey backpack it is so cute.

Thanks for all your prayers for Logan it means so much to me.

Have a great weekend.; August 28, 2009 at 9:46 AM

Post a Comment

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

Pages

Thursday, August 27, 2009

Holter Monitor

2 comments: