The pulmonologist came in a few hours ago and did an examination. He doesn't feel this is pneumonia either but feels there must of been some underlying problem with the lungs to begin with, then possibly catching a viral infection caused her sats to drop and respiratory distress. He said there is nothing different they are going to do as far as treating her symptoms.
The plan, so to speak, will be to get her respiratory issues cleared up and hopefully breathing on room air. He said if she doesn't tolerate room air than he doesn't have a problem sending us home on a 1/8th of oxygen. They have spread her breathing treatments to every 3 hours which she seems to be tolerating just fine. The pulmonologist said if the treatments help then he will send us home with that as well.
The tests he wants done are in chronological order are: Swallow study, pH probe, upper GI study, CT scan of her lungs, and a bronchioscopy. They might do the swallow study and pH probe while we are here. The GI doctor will have to be called for those so we will see what he thinks tomorrow. For the other studies she will need to be fully recovered before doing, so we're probably looking at weeks out.
So we are left with no answers but are definintly in contact with the right doctors. I, of course, am getting nervous and praying that this will just pass and she will come off of oxygen and we can go home and chaulk this up to a bad case of pneumonia. We still haven't met with the immunologist but I'm hoping they get ahold of him tomorrow. I guess its all hit me like a ton of bricks when the doctor said this is an ACUTE problem. When I found out about her having DiGeorge Syndrome I researched the internet and got very scared with all the information I found out. I have never looked at my daughter as a sick child, but tonight I felt reality smacking me in the face. I am still believing and standing in the Word that she will be delivered from whatever she is battling. I know that God will get us through this time and this will be just one more thing we add to thing list of miracles that God has done for us. Right now we are just taking it one day at a time.
1 comment:
Take it one step at a time. It sounds like you have some good people looking out for Arianna, so that's hugely reassuring. I'm sure you'll have a much better idea of things once the test results are all in.
Take care, rest when you can and give your little girl some extra squeezes for me! She's so dang cute.
Post a Comment