The Heart and Soul Family: Prayers for Isaac

Wednesday, January 16, 2008

Prayers for Isaac

I have another prayer request for all my prayer warriors out there. Our heart buddy, Isaac, is heading out to Stanford tomorrow to prepare for his next open-heart surgery. This will be his third open-heart surgery in 6 months. He is such a strong little man and in need of some prayers. If you would like to leave a message for his family, here is his link Isaac. Kathy, you can get through this, just put your faith in God and he will take care of the rest.

2 comments:

Andrea said...: We are keeping Baby Isaac in our prayers. Thank you for your comment on my blog the other day. Your daughter is beautiful and I look forward to reading some of your older posts. It's always nice to find another heart mom, and especially one who knows about 22q also.; January 16, 2008 at 1:05 PM
Andrea said...: Hi Vanessa,
Thank you for your kind words. We'd be happy to be listed as a heart buddy! Can we add you too?; January 17, 2008 at 7:52 AM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Wednesday, January 16, 2008

Prayers for Isaac

2 comments: