So our morning started out pretty good. We had to get up early for a doctor appointment. All was going welll - headed out the door, realized I had to put the car seat in my car because the van is not running, get the car seat in, put all the bags in the car, get Arianna strapped in the carseat, shut the door to realize.....I LOCKED MY KEYS IN THE CAR!!! I had no way of getting in the car and there was my precious baby sitting so nicely in her carseat wondering why in the world I was staring at her through the window. Thank goodness I had a spare key to the house hidden somewhere so I was able to get inside and get the house phone (since I locked my purse in the car I had no cell phone). I called my mom, but no answer, and for some reason I couldn't remember Roberts number so the only number my stupid brain knew to call was 911. I was crying and felt like an idiot. 5 minutes later I had the biggest firetruck with 4 firefighters at my house trying to open the car door. Well apparently my car is the safest car in the world and the firemen couldn't even get the door open. I finally got ahold of my mom and she gave me Roberts number so I called him and told him he needed to come home to open the car because I locked Arianna in the car!!! He was 20 minutes away so I was a nervous wreck, trying to calm Arianna but she was scared to death because she could see all these men attacking the vehicle and she had no clue why mommy couldn't open the door and get her. The nice thing was that I was able to use sign to communicate with her. I told her the men were "good" and they were going to "help her". She immediatly calmed down after I told her that and seemed to be less scared. It took them 25 minutes to open the door and they felt pretty dumb cause it took them that long. They said if it was summer they would of already broke the window. Good thing they didn't have to do that. So that was my stupid mommy moment of the day. I still can't believe I did that. I feel bad for the 911 dispatcher...I was crying so bad when I called she calmed me down then told me she too has locked her baby in the car once and not too feel bad. I'm just happy she at least had her paci during this whole ordeal. Oh man...what a morning.
I tried calling the immunologist office to see if we could still make it but no one answered so we decided to just show up anyways and try to be seen. I think after they heard the sob story of how I locked Arianna in the car they felt bad so decided to squeeze us in. LOL! The doctor started telling me how children with DiGeorge Syndrome can develop autoimmune disorders and he will be keeping an eye out for that. I asked him why her IgE levels were found to be abnormally high and he said they really weren't that high and that this is normal in children with DiGeorge. I have a really hard time understanding the immunology stuff so I put alot of trust into this doctor. This can possibly mean she will develop allergies as she gets older but it can also mean nothing. Just wait and see type thing....seems to be the theme for these doctors. He did order some labs to be done which will check her T-cell function and regular labs to make sure there are no red flags. I couldn't get these labs drawn today because the cells would have died before reaching the lab so we will be going on Monday to get labs drawn. We also have her hearing test on Monday so we'll probably get the labs done early so she has time to calm down before going in the afternoon for the hearing test.
Oh yeah, I did ask the immunologist about exposing Arianna to other children and he didn't give me a yes or no answer. I told him it would be nothing like putting her in daycare but maybe letting her go to the church daycare (supervised by myself or my mom, since I'm not ready to just hand her over). He said that church daycares are worse than if I put her in daycare 5 days a week. The best way I can explain this is if there were 10 kids who go to 10 different daycares during the week then they come to church, then technically Arianna is being exposed to 10 different daycares. People don't realize they can be caring a virus without having symptoms. I figured since her levels are good then we wouldn't have to worry about her immunity but that is not the case. He said no matter what, she is a DiGeorge child, which means she was born with some of her thymus missing and therefor means she is missing part of her immune system. No matter what we do she will pick up colds/virus more often than healthy children. It's up to us if we decide to expose her to these things and I for one don't want to. He definintly recommends keeping her away from school age children till RSV season is over. There is a more serious threat with her since we don't know what caused her respiratory distress and low saturations a few weeks ago. So...with this being said we are still in quarantine, which I like to call it, and holding out until the RSV season is over. This is a small price to pay for the health of our child. The last thing we need right now is for her to get sick right before these upcoming tests. So for those of you we haven't been able to see please don't think it's because we don't want to see you all its just what we have to do in order to keep our baby girl well.
7 comments:
Hey there Vanessa .
Your needed on the Parent 2 Parent board. We have a mom on the Children Medical Matters board that is looking for other DiGeorge familes . I told her I'd come get you :>) We've also had one other family with a child with DiGeorge recently join too .
www.parent-2-parent.org
Vanessa...
Tell your hubby he needs to buy you a fancy new car with On-star...so, when you lock the keys in again...they'll unlock the door for you. Tell him it's an investment in Arianna's future!!!
(I'm just cracking myself up...i think i'm so funny)
I'm surprised that you have to keep her that AWAY from kids still...hmm...
I hope you have a less STRESSFUL day tomorrow...(hide more keys around your house!)
Take care,
Thanks for the laugh!
Kathy
I'm so sorry you locked your keys in the car! What an ordeal! I'm glad everything turned out just fine. I am also surprised you need to stay away from other kids so much. Drew has a very low t-cell count, he still hasn't caught up yet and can't have live virus vaccines, but his immunologist told me to put him in preschool. We try to be careful not to be around kids who are obviously sick and I have a reputation for being the mom who ALWAYS has purell, but we try to have as normal a life as possible. In the end you just have to do what works for your family whether it's staying home or making careful choices about where you go. I hope you have a great weekend!
I am cracking up from Kathy...guess she is here to make us all laugh a bit. I read the post the other day, but can't remember half of it, but wanted to say hi and I am glad that the whole car ordeal got resolved...sorry for that scare...that is my big fear and Micah is always stealing my keys and locking and unlocking them, so I am sure that the day will come soon when I lock him in there on accident.
Have a great rest of the weekend! I hope it is toasty warm there in AZ...I am jealous, it is too cold here.
Hugs,
Samantha
I know how you feel...we've done the same thing...and had to call the police to get Seth out of the car! I think every frazzled parents do it at least once!
It can freak you out when you start "worrying" about everything that can happen with these kids! Just take one day at a time and just love her! RSV season is almost over...and then you can get out! YEAH!
Sending love and hugs!
Oh Vanessa!
I can't believe your ordeal with locking your keys and Arianna in the car!! You poor thing....I wouldn't have been able to think straight!!! Hopefully, one day you'll be able to look back and have a good laugh...but it will probably take a few years! :)
That was interesting what the doctor said about the kids at the church nursery....I never thought about them bringing germs from everywhere else. Thankfully, we've never put Emma in the church nursery, and I probably never will now! It's hard enough to keep her well just being here at home.
I'm praying that Arianna will continue to stay healthy and strong. Give that pretty girl a big heart hug from her friend, Emma!
Lots of Love,
Wendy (& Emma, too!) ~ 2-years-old, 6q25.3-qter deletion, TOF (2nd OHS rescheduled for 3/14/08)
www.caringbridge.org/visit/emmanicole
Hi Vanessa so sorry you had a bad day locking Arianna in the car the other day! I think about you guys often and wanted to stop by and let you know I am always praying for Arianna........
Love Chrisitna & Madalynn
www.caringbridge.org/visit/madalynngarcia
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