The Heart and Soul Family: Let's pretend

Saturday, January 3, 2009

Let's pretend

Since we had such a rough time with the cannula last night I decided to put one on her baby doll since she has really been into playing with her today. At first she was not sure what to think, then she warmed right up. The cutest part was when the cannula fell off the baby's nose she said "uh oh" and went and put it back on her. She is the most compassionate little girl! Here are some pictures with her baby.

6 comments:

mina said...: What a sweetie! I hope those sats come up soon.; January 3, 2009 at 7:43 PM
jencooper said...: Ohh...I love that picture! I am so happy that she is so caring of her baby!

I hope that she is feeling better!!

<3,
Jennifer; January 4, 2009 at 7:30 PM
Amyacl said...: What a great idea to let her see the cannula on her baby. I hope it will help her accept it a little more easily. Hope she is feeling better soon!; January 5, 2009 at 7:42 PM
Mami Adame said...: Love the pics, so sweet! Sorry to hear the oxygen had to come out. Amazingly Angelina is keeping hers on without a fight...wonder how long that will last! Hope Arianna gets better soon!; January 5, 2009 at 11:37 PM
Unknown said...: Hwat a sweet Heart, she will hopefully get the hand of it, seeing that it is on her baby will help alot. Good Luck

Karen; January 6, 2009 at 4:22 PM
Anderson Family said...: So sweet! Although she's probably thinking, if I have to deal with this, something else does too! I'm glad that she's feeling better. She is the kindest kid! Her heart just wasn't big enough to hold all her love!; January 7, 2009 at 4:30 PM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Saturday, January 3, 2009

Let's pretend

6 comments: