Just an update on whats happening around here.
Arianna is getting better at taking some steps. She can actually take about 8-9 steps then falls down. She is so determined, it just blesses my heart so much to just watch her. I know she will be walking around soon.
Yesterday she cut her second tooth and tonight she is working on getting her third. I get so excited every time I see a new white speck on her gums! My baby girl is growing up.
This afternoon Arianna and myself went to the Children’s Clinic and gave the social worker flyers for the support group. We also stopped by Pilot Parents, which is located in the same building and told them about Mended Little Hearts. I spoke with the executive director who was very excited about the group. She is putting up flyers at the clinic and also putting our information on their website. I told her we don’t have a meeting place yet but once I get a few families interested then I will work on that. She told me to talk to the administrators at the Children’s Clinic and ask them to provide us a room for our meetings. They allow other support groups to use their facilities but sometimes it can be hard getting in unless your associated with the clinic somehow. She then told me if they give me a hard time she will talk to them personally and help us get in. God is opening doors for Mended Little Hearts and I am so excited.
Earlier this morning I had called a local pediatric cardiology office and told them about Mended Little Hearts and asked if I could drop off some flyers. The office manager said yes, so Arianna and myself went by to drop them off. When we got to the office we waited a few minutes then a young boy walked in with his mom. Arianna was immediately trying to get out of my arms so she could go play with him. It was so cute. She actually walked the most I’ve ever seen her just to get to this little boy. He was so cute and got on the floor to talk to her. It feels so good to see her interact with another child because she has been isolated from so much. I spoke with the office manager about the support group and she was really nice and really excited about the group as well. She asked if I wanted to meet the two doctors and I was amazed they could take a few minutes to speak with me. We chatted for about 5 minutes and they told me they have a few families who have asked about a support group and they are going to give them a call. They asked about Arianna’s heart defect, asked who did the surgery, who is her cardiologist. They even gave me some medical websites, which are medically correct so to speak, as far as learning about other CHDs and treatment options. These two doctors were so nice and it just surprised me how they both stopped everything they were doing just to talk with me for a few minutes. You don’t get that from many people nowadays. They said they are behind me 100% and looking forward to what will happen in the upcoming months. I walked out of that office being reassured that I am doing the right thing. I am so excited and nervous at the same time. I know this may turn into a big project but I believe God will work everything out…look at how things are already going.
I guess I just wanted to share those things with you all. If God puts something on your heart, don’t back down because it seems too big or to hard. All things are possible through Christ who strengthens me!
4 comments:
I think it's wonderful that you are starting a support group in your area. It takes a special person to initiate that and be willing to put in all the hard work that is necessary.
I also wanted to share with you that Drew didn't really start walking around on his own until he was 14 months old and didn't have any teeth until he was 18 months old! So far no doctor has told me that 22q affects the erruption of teeth, but it seems to be common with the few people I know of.
Good for you for starting up a MLH group! I'm working on getting one started here in Mpls, as well. Looks like it is going to take some work, but it will totally be worth it.
I wish I had your energy! Lead by example...GOOD JOB!!! I'm not organized enough to start a support group...but, would certaintly attend one.
There is HOPE that Isaac will walk one day...and have teeth! It's almost funny. He's 10 months old...and I'm still trying to get him to sit up! YEAH ARIANNA!!! I hope you've made a trip to the shoe store...she'll be running soon!!!
Hope you have a good week!
Congrats on all the progress on your new supprt group, that's awesome. And I bet Arianna looks adorable now that her teeth are cutting through. We're working on the dreaded canines right now, ugh!
Mina
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