The Heart and Soul Family: Synagis today

Monday, March 2, 2009

Synagis today

Arianna had to get her Synagis shots today. :( No fun at all. Since it was such a beautiful day outside we decided to wait outside until her turn. She cried the second we walked in until she saw the monkey she loves. She has loved this monkey since she was a baby.

I wasn't sure what her weight was last month so when I got home and checked her records I was shocked to find out she gained....1 pound 3.5 ozs...which makes her 22 pounds 9.5 ozs!!! She has never gained over a p0und in 1 month ever.

This is her at home just being a ham.

Make an on-line slide show at www.OneTrueMedia.com

4 comments:

mina said...: Yay for the weight gain. And I love the video, Arianna is so cute!; March 3, 2009 at 7:48 PM
The Portas said...: She is just the cutest, Vanessa. I want to squeeze her! And what WONDERFUL weight gain! YAYYY! Way to go, little one. Keep it up...; March 4, 2009 at 6:16 AM
Unknown said...: Way to go, Glad to hear she is gaining weight that is always a plus. Have a great day!

Karen; March 4, 2009 at 8:32 AM
Mom 2 André said...: This is what you get when a cute little girl is in a video - a very cute video! Gaining weight is such a good sign! Thanks for inviting me to share your journey.; March 4, 2009 at 12:53 PM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Monday, March 2, 2009

Synagis today

4 comments: