The Heart and Soul Family: Mended Little Hearts BBQ

Saturday, November 14, 2009

Mended Little Hearts BBQ

This past weekend was our Mended Little Hearts BBQ. We had such a wonderful time!

All but 3 are heart kids.

Aunt Lissa & Ari in the jumping castle. Definitely Ari's favorite!

Ari & Sofia

Heart Buddies!

4 comments:

Unknown said...: Looks like you guys had a great time. Enjoy your week; November 17, 2009 at 1:26 PM
Tina:0) said...: Ugh, I've been sooo behind... can you ever forgive me?

It looks like the BBQ was a great time! I'm so glad that you all have such a wonderful group. I wish there was one in our area, but the closest one is 90 miles away:0(

I LOVE the Halloween pics... Ari makes a great Dorothy! Glad she's doing so well! Give her big hugs from us!; November 21, 2009 at 5:37 AM
Wendy said...: Vanessa,

I'm getting caught up on some posts that I've missed....Arianna looked so adorable dressed like Dorothy for Halloween! (Loved the mouth full of candy, too! ha! She's come a long way, huh?!)

I'm glad you had a great heart picnic. The weather looked wonderful! :) We have snow on the ground this morning.....

Take care and give that little sweetheart a big hug from us!

Lots of Love & Prayers,

Wendy (& Emma, too!)
www.caringbridge.org/visit/emmanicole; November 23, 2009 at 7:00 AM
The Portas said...: Great pics! I'm glad you guys had a good time!; November 24, 2009 at 1:40 PM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Saturday, November 14, 2009

Mended Little Hearts BBQ

4 comments: