The Heart and Soul Family

Wednesday, July 1, 2009

I woke up feeling worse today then I did yesterday. UGH!!! I just want this cold to be gone.

Can you believe Arianna slept from 5pm last night till 9am this morning?!?! I couldn't even enjoy that time cause I was more worried about why she was sleeping. lol! She still has a runny nose but she doesn't let that stop her.

Tomorrow I am going to try and relax as much as I can so I feel better by Saturday. We are planning on going to a birthday party but if we are still sick that won't happen, so I better try to rest up now.

I just have to tell everyone how happy I am to announce on MY blog...lol...Krista Layman had her baby boy this morning. Welcome to the world Grant Lee Layman! If you want to check out how adorable he is just click here.

1 comment:

The Portas said...: Feel better soon! Summer colds are the worst. :( Sending prayers of health your way. I hope you are able to enjoy your weekend! xo; July 2, 2009 at 7:19 AM

Post a Comment

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

Pages

Wednesday, July 1, 2009

1 comment: