The Heart and Soul Family: We finally got it....

Sunday, December 30, 2007

We finally got it....

A tooth that is! This morning I was feeding her and she gave me the funny little smile she always does. Heres a picture from Christmas with that cute smile.

And there is was, on the top right....her FIRST TOOTH! I am so excited. I thought she would be toothless forever.

Her eating is still going well and she signs 'eat' all day long. I can't wait to see what she will eat next.

Well we are off to go buy Flash some rocks, plants, and worms to eat. Arianna is so into our new turtle, she will crawl up to the dresser and babble to be picked up so she can see Flash. TOO CUTE!

Thanks for checking on us. Have a wonderful Sunday!

2 comments:

Kathy said...: I thought we were the only ones waiting to see teeth! Congrats!!!
We just started watching our signing dvds....I'm hoping they'll start sinking in (instead of the Yo Gabba Gabba that he loves)!
Glad to hear you guys had a good day!
Kathy; December 30, 2007 at 9:33 PM
The Portas said...: SUCH a cute pic of Arianna and Elmo!

Congrats on the new tooth! Watch out, new teeth bring lots of painful biting of body parts. :); January 2, 2008 at 9:09 AM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Sunday, December 30, 2007

We finally got it....

2 comments: