Thursday, April 9, 2015

Cardiology Update - August 2014

Arianna's cardiology check up went AMAZING! Not only did we get to see our favorite cardiologists but also our favorite echo technician! smile emoticon

This may be more info but for my heart mama's I'm gong to throw it out there. Arianna right ventricle muscle has decreased and is normal size!!! Praise God!! This is what we have been waiting to hear since surgery. I wanted to cry I was so happy. Her cardio also said her pulmonary valve conduit looks absolutely beautiful. Even said the best repair he has seen. Just a trace amount of regurg which is completely normal to have. But the function is perfect! He mentioned something new to me..I guess they measure the tricuspid valve annulus as another indicator. Arianna's is on the higher end of normal. So that is good..but a new piece of information for me to be aware of when getting future echos.

Speaking of future echos and appointments..the cardiologist was SO impressed with her results today he gave us the 1 YEAR clearance!!! FIRST TIME EVER!! We have been able to go 3 months and 6 months but never a full year! God is SOOO good!!! He told her to enjoy her life..do all the things she wants to do and that we shall!

Quick little update: She hit the 50 pounds mark!!! WOOHOO!!! She has been at 46lbs for 3 years so we are VERY happy about the weight gain. smile emoticon

On a side note: We signed up for a research study at the UAMC for children with CHDs and sleep apnea. We will be doing a home sleep study this weekend to do our part in the participation. Arianna has never been good at sleeping so we have been curious about this anyways. This will be a good way to get some information and help research! If she doesn't pass than we can go for an inpatient sleep study to look into things further. But I asked Arianna if she wanted to participate in the study and she said yes! So we go Friday to do some cognitive testing and get our equipment for the weekend.

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