The Heart and Soul Family: Gingerbread House

Wednesday, December 24, 2008

Gingerbread House

We decorated the gingerbread house yesterday. Ariannas brother and cousin were able to help too!

Even Robert got in on the action

Final product...pretty good for our 1st gingerbread house!

9 comments:

Amyacl said...: What a great gingerbread house! Arianna looks adorable - I love her outfit. Merry Christmas wishes to all!; December 24, 2008 at 6:30 PM
mina said...: Nice job with the gingerbread house!

Merry Christmas to all of your family!; December 24, 2008 at 8:22 PM
**Colleen** said...: they all look so sweet! I bet they had a blast =) Merry Christmas!!; December 24, 2008 at 10:07 PM
Jane said...: Merry Christmas Vanessa! Arianna is looking so big :); December 25, 2008 at 11:37 AM
Tina:0) said...: Much more ambitious than our house was yesterday!! (lol)

Hope you all had a wonderful day today - Merry Christmas!; December 25, 2008 at 5:30 PM
Kathy said...: It's too cute...
it puts ours to shame...
GOOD JOB!
Merry Christmas!; December 25, 2008 at 9:30 PM
Samantha said...: Great work! I love gingerbread houses...what fun!

I hope you had a wonderful Xmas!

Much love,
Samantha; December 26, 2008 at 7:17 AM
The Portas said...: It looks great! What a fun thing to do together. Good job, you guys (and you all look so cute, too). xoxo; December 30, 2008 at 11:31 AM
Anderson Family said...: That's an awesome gingerbread house. Now I know the picture looks like Robert's helping, is he really? Or just eating it?; December 31, 2008 at 7:51 AM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Wednesday, December 24, 2008

Gingerbread House

9 comments: