The Heart and Soul Family: Trip to Apple Annie's!

Monday, October 12, 2009

Trip to Apple Annie's!

This saturday was our Mended Little Hearts trip to the pumpkin patch. We had a blast! We got to meet a new heart family which was really nice.

Photo and video editing at www.OneTrueMedia.com

6 comments:

**Colleen** said...: OMG -- she is getting so big! she looks great, I love her hair. too cute!!; October 13, 2009 at 8:03 AM
Unknown said...: Oh how much fun you guys had. Gosh she is getting so big and so cute.; October 13, 2009 at 11:18 AM
mina said...: What fun! A perfect activity for fall!; October 13, 2009 at 12:37 PM
The Portas said...: Looks like a blast! Elijah just got to pick his first apple a few days ago, too.; October 14, 2009 at 6:45 AM
Amyacl said...: Looks like a great time was had by all! Can't believe how big she is getting!; October 14, 2009 at 1:14 PM
Anderson Family said...: Now I'm even more bummed that we couldn't go! It looks like you had a lot of fun! Ari's getting so big and stinking cute!; October 14, 2009 at 2:03 PM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Monday, October 12, 2009

Trip to Apple Annie's!

6 comments: