The Heart and Soul Family: Pictures

Sunday, June 8, 2008

Pictures

I haven't posted pictures in awhile so here are the most recent pictures. Hope you enjoy!

Make an on-line slide show at www.OneTrueMedia.com

7 comments:

jencooper said...: She is such a cutie!! Thanks for sharing the pictures!

<3,
Jennifer

www.caringbridge.org/visit/gracecooper; June 8, 2008 at 5:00 PM
mina said...: What a girly girl! Arianna's like a little doll, she's adorable!; June 8, 2008 at 7:44 PM
The Portas said...: I'm so glad to see some pics of the adorable girl! The tutu looks so cute on her!

Thanks for posting these...oxoxox; June 9, 2008 at 5:51 AM
Samantha said...: She is SO CUTE!!!! Tinkerbell! I am so happy to finally get some pictures of that princess! She is so cute! I call her...Micah gets her to marry...she is going to be a really good mommy and she is too cute! So...let's start planning the big wedding!

Love ya!
Samantha; June 9, 2008 at 7:57 AM
Kathy said...: Gosh...could you imagine how wild your grandchildren will be if Arianna and Micah get married....those two are wild...and their kids will be the wildest!!! Can't wait to read their blogs 25 years from now!!!

You're SO sweet letting her play in the sand box...I'd hate cleaning sand out of all their little cracks!

Thanks for the picture fix!!!; June 9, 2008 at 1:56 PM
Tina:0) said...: Wow, you have you're hands full! What a cutie-pie! I love the tutu & wings. Tinkerbell came to mind for me, too! What a supermodel you have on your hands!; June 10, 2008 at 5:26 AM
Colin's Blog said...: Love the video-Arianna is so adorable!! It's so good to see her running around and having fun. Can't wait for Colin to be running around someday!!; June 10, 2008 at 5:11 PM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

Pages

Sunday, June 8, 2008

Pictures

7 comments: