The Heart and Soul Family

Saturday, February 7, 2009

We started our day out way too early.

So I work after Arianna goes to bed. Some nights I can't sleep and will work till 2 or 3am. Well Robert had to go to work at 4am today so we was up about 3:15 this morning, let the dog out and she started barking like crazy. The dog woke up Arianna at 3:30 and I tried to get her back to sleep but she was wide awake. I needed to finish a report for work so I put her in the living room with cartoons and worked another hour. By this time I was dead tired but my baby girl just sleep for 7 hours and was perfectly fine watching cartoons.

We ended up watching a movie and I finally crashed about 7am for a few hours. I woke up in the panic mode because I don't remember Arianna falling asleep. She was lying there in a funny position and it worried me. I called out to her and she didn't move. She didn't look like she was breathing...okay complete panick mode kicks in. I shake her...nothing....this time I shake her while I'm screaming her name....NOTHING....I'm crying hysterically thinking the worst has happened and I was the horrible mother that was just sleeping next her while this happened...then she took a deep breathe while I was putting my ear to her chest to listen for breathing. Panic mode over....but I'm still crying. I NEVER want to wake up like that again. Maybe I'm just too high strung or something but this is not the first time this has happened to me. Remember the Robert waking me up incident a few months ago.

Robert got home and let me take a nap. I did a quick run to Wal-mart and now we are getting ready for dinner.

I'm going over to my sisters house tonight for a few drinks with the girls, which I think I really need at this point.

I know I've promised pictures and I'll get those to you shortly.

2 comments:

Unknown said...: That is very scary to go through, was she just in a very deep sleep?
After what you have been through go and enjoy your drinks, My last week has been awfull to,I do not drink so go and have one for me ok:)

Take care and try and get some sleep.

Karen; February 8, 2009 at 12:33 PM
Mami Adame said...: SCARY!!! Ii figures the dog wakes her when you dont want her to wake up!; February 24, 2009 at 11:59 AM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Saturday, February 7, 2009

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