The Heart and Soul Family: 1 year Anniversary

Thursday, May 22, 2008

1 year Anniversary

Today marks Arianna's 1 year anniversary since her open heart surgery. I have experienced so many emotions today but mostly I've been grateful. She is such a strong little girl and I am so proud to be her mama. Every day is a gift from God!

Here is Arianna's montage which documented her surgery.

View this montage created at One True Media

Arianna Marie

And our montage celebrating "Happy Heart Day!"

1 year Anniversary

***I am having trouble adding the montage to the blog directly so I had to do it this way***

3 comments:

The Portas said...: Happy heart day, Arianna! You've come such a long, long way since then. I'm so happy that we have been able to keep up with your journey.. You know, Elijah's heart day is only a couple days after yours! Take care. I loved the videos. xoxoxo; May 23, 2008 at 6:13 AM
Amyacl said...: It must be hard to believe that a year has passed since that day. May the year ahead bring good health and happiness.; May 24, 2008 at 3:03 PM
mina said...: Happy heart day! Sorry I'm a few days late, we've had heaps going on. Hoping Arianna's on the mend too!; May 26, 2008 at 1:40 PM

Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Thursday, May 22, 2008

1 year Anniversary

3 comments: