Pulmonary update

I can finally tell you all about my talk with the pulmonologist. I got a call on Monday and after making her feel awful for not calling sooner she told me exactly what the bronchoscopy results were. I won't go into detail but basically everyone was within normal range. The only thing is her eosinopils were at 4%, which is good because normal is <5% but she said almost ALL kids come back with a 0%. So basically this means she is more prone to developing allergies and/or asthma. She is not giving her a diagnosis but it's something to be aware of if we notice more symptoms. This also concurns with the previous lab works that was done that showed a high number of IgE's and eosinphils. Arianna is not aspirating and does not have sequestration!!! THANK GOD!! Since we haven't had a clinic visit I had to give her a full history over the phone to bring this doc up to speed. She explained that Arianna's saturations should never be below 95%, whether she is awake or asleep. She agreed with our pediatrician and said if she is below 92% while awake or below 87% while sleeping then we need to put her on oxygen, or if we notice she is having a difficult time breathing. This was good to finally have a number to go off of. This being said she can't explain why she is sating so low while sleeping. She said the CT doesn't give us a good enough picture but she is chalking it up to trauma. Arianna has been though open-heart surgery and had multiple anesthesia's done for tests that she thinks it's possible scaring and trauma. This was sad to hear but at least it isn't something worse. I asked what, if anything, needed to be done and she said just time. Over time she will develope good lung tissue which should replace the bad. The biggest thing is that Arianna not get any colds. This will set her recovery back even farther.

So as you all know we are staying just as precautious. If you are sick, or even have a sniffle or cough, DON'T COME OVER!! I can't stress this enough. I don't know how many times I could get upset when people think it's nothing and still proceed to come to my house and act like everything is okay. I want you to know it's not okay. Please respect my wishes and just wait until you are symptom free. We love are daughter and are trying to do the best to keep her healthy.

With all of this being said, we still don't have her immunology studies so have no idea how well her immune system is functioning. NO ONE will talk to me from that office so I'm beginning to think they have lost her blood again. I am furious and making a call to the lab today. Until we get these results we are not taking Arianna out in public but are going to try and open up a little more and start seeing more family. We will however be taking he to the Heart Walk on Saturday because I will be speaking and they have asked if Arianna can attend. I will be very protective of her that day so if you go and I don' t let you hold her please don't take offense.

I think that covers everything but I'm sure I'll think of something else later. I have some errands to run so I better go. I still haven't had a chance to check on all my heart babies but I will soon!