The Heart and Soul Family: My heart is broken

Wednesday, May 7, 2008

My heart is broken

I have been extremely busy and tonight was able to catch up on some of my friends on Care Pages. I went to check on sweet baby Bailey Reynolds and read some really bad news. Bailey ended up having an infection that caused her heart to work extra hard over the last few days. Because of the infection, extra work load on the heart, and damage that was caused she went home with Jesus on May 1st. I am in tears and heart broken right now. I literally got sick to my stomach and honestly have a hard time sitting here writing. This is the same way I felt when Baby Kate went home with Jesus. Krista I hope you don't mind, I gave Amy (Bailey's Mom) your blog in case she needed someone to talk to. You have helped so many people get through some hard times and what your doing through Kate's Kart is an inspiration to us all.

I don't know who all reads my blog. I know there are many people who do, but don't leave messages. Just remember life is precious. It's not something we should not take for granted. Sweet Bailey just caught the nasty bug that was going around the family. (This is why I am so adamant that we don't have sick people around Arianna.) So tonight just say a prayer for Bailey's family to get through this rough time.

Thank you for reading. I needed to get this off my chest.

I love you Bailey...and you will always be in my heart!

4 comments:

Kathy said...: Oh...we'll put Bailey's family in our prayers tonight.
I just checked on Krista too..
yes...hug your little ones tight...; May 7, 2008 at 10:41 PM
Samantha said...: I am so sorry Vanessa...how devastating. Her family is in my prayers.

Love ya!
Samantha; May 8, 2008 at 5:02 AM
Tina:0) said...: My heart is breaking along with yours, Vanessa :( She is such a beautiful little girl. With Vaeh going into surgery, my crazy thoughts have come over that scenario & I don't know what I would do? We'll be praying for Bailey's family!

Give Arianna a hug from us!

Luv,
Tina; May 8, 2008 at 5:24 AM
The Portas said...: This is tough news and I'm so sorry it's affecting you so harshly. We will keep Bailey's family in our prayers. What a little cutie.; May 8, 2008 at 6:05 AM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!