That’s right, I’m officially Dr. Mom! I am just so tired of getting no where with these doctors. The first thing the pediatrician said today was how great Arianna looked. I told him I was upset that we don’t have any answers to whats going on and why Arianna needs oxygen. He said some kids with issues like Arianna (but would not explain what issues) tend to have a hard time with respiratory viruses and will need the extra help if they get sick. This is coming from the man that told me 6 months ago that my daughter was not immunocompromised and should not worry about anything. I told him I thought waiting 2 months to see a pulmonologist was ridiculous but he thinks its just fine. He said as long as she looks good then not to worry. Yeah, this is coming from the guy who saw her the day before she was hospitalized and didn’t think any thing was wrong with her. I am so sick of this doctor. He told me I can stop her antibiotics since she only has 2 more days and she has already been on antibiotics for a week. He then went on to say he knows I won’t stop but its totally up to me. I’m thinking hell yeah I’m going to finish her antibiotics, why wouldn’t I. He goes on to tell me I can take her off oxygen for an hour or two if we needed to go do something that the oxygen would make difficult to do. Okay, I don’t understand why the hospital would say to keep her on it 24/7 and he thinks she can be off of it. Isn’t that the point of weaning someone off oxygen, so their bodies get used to the lower levels not just completely shutting it off all at once. Besides she didn’t tolerate that very well in the hospital. So he said to give her 4 more days on half a liter of O2 then after that I can adjust as needed. I just can not stand this man anymore and will start scheduling our followups with the female doctor instead. Hopefully we will get along better. I did tell him that I fell he just blows off the things I’m concerned regarding Arianna, but didn’t get any response to that. I am not going to just sit here and act like everything is fine. I know she needs time to recover but I will not just sit here and wait 2 months to see a specialist.
So I tried to get our appointment with the pulmonologist moved up but they are totally booked. She said if I had our pediatrician call then they could get us in sooner. Well we know he won’t do that so we are screwed. I told her I will be seeing my daughters cardiologist in 2 weeks and she said if our PC is concerned to have him call and get us in sooner. I really feel like the only doctor that truly cares is our cardiolgoist so I’m anxious to see what he says at our appointment on the 20th.
For the meantime we are hanging out at home and keeping Arianna away from children or anyone that is sick. We don’t want her to catch something and wind up back in the ER, since we all know that is a horrible place to be. I am emotionally exhausted but I know that everything will work out . For the meantime, I am Dr. Mom and will take care of Arianna the way I feel fit. I am so exhausted I think I’m going to go lay down with Arianna.
5 comments:
You are an awesome advocate for your daughter. We mamas need to do that. I cannot believe that your ped won't help to get you into the pulmonologist sooner. Is there another clinic you can go to that would be more supportive and proactive? A good ped goes a LOOOOoong way. Can you call your PC and talk to him before your appt on the 20th? And what is up with the ped telling you to stop antibiotics before you should? What???!??
Well, hang in there. You are doing everything in your power to give Arianna the best care. You're a very good mama and a good Dr. Mom!
I am a mom of two girls in Fort Wayne, IN, I came across your blog while reading about Kate Layman, (my husband was a pastor on staff at their church), anyway, my heart has been touched with Arianna's struggle. She is a beautiful little girl. I just wanted to encourage you, it stinks that you are getting such junk from your pediatrician. Follow your gut on this one, God gave intuition to us moms for a reason. Switch if you feel you need to. I know that must be a huge hassle to try and explain everything with someone new. Please know that I pray for you when I read your blog. God hears your heart and your cries. He knows how frustrated and exhausted you are right now. I will continue to pray for you and Arianna. Here's a verse in regards to your doctor: "Show us your favor, LORD, for we've had more than enough contempt. We've had more than enough scorn from the arrogant and contempt from the proud" Psalm 123:3-4
For Arianna: "The LORD protects you; the LORD is a shelter right by your side. The sun will not strike you by day, or the moon by night. The LORD will protect you from all harm; He will protect your life. The LORD WILL protect your coming and your going" Psalm 121:5-8 All of Psalm 121 is encouraging. I hope this gives you a little lift, I will pray for you all.
God bless you.
Vanessa,
I know you probably have alot on your plate right now, but one thing is for sure. It is ANY doctor's privilege to take care of your child. If they brush you off then they don't have Arianna's best interests in mind. Time to FIRE the doctor. I hope you can find a pediatrician you can click with, and who will listen to your concerns. Moms know their kids. We're wired that way. If you have a concern it is absolutely right to express it.
Our pulmonologist is always booked also...and I ALWAYS ask my cardiologist to call and get us in...and does that day! So, call your cards office now...the pulmonologist could just see her and tell her that you're doing everything you can...or he could offer more suggestions...
All the kiddos are going crazy right now!!! Hope you get some rest.
But, our pulmonologist did tell us that these heart kids to have trouble in the winter when they get even the slightest cold...so, hopefully, that's all it is...she just needs a little support for a while. (same as Isaac..just a little O2 for some adding UMPH in their step??)
We'll keep checking on you..and good for changing peds...we had to do the same. I wish we all had Samantha's ped...he sounds awesome!
NESSA I SO SENSE AND FEEL YOUR FRUSTRATION! Working w doctors I really do understand! BUT I totally KNOW that God has given us mom's a specail insite in to our children! I KNOW you hear from God and trust that! Hopefully the cardioligist can help!I so wish I was at that peds office I would call for you! I would definately finish the AB and keep her on the o2 as you were instructed @ UMC and just pray for His guidance and follow that! Love and Prayers! Marie xoxo
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