The Heart and Soul Family: Love our Team!

Saturday, October 6, 2012

Love our Team!

I knew Dr. B wouldn't let us down. He is sqeezing us in next Friday for pre-op visit and echo to check tricuspid valve one more time and get a look at those pulmonary branch arteries. He is going to talk with the cath doc and Dr. Teodori and answer my questions I have about the recent confliction in stories. He is wonderful!

I'm so blessed to have such a wonderful team that I fell confident in taking care of my girl. Here is the article that was ran in my moms magazine, Tucson Lifestyle Magazine. Dr. Teodori, Dr. Barber and 2 PICU nurses go to Ethiopia to perform about 10-12 life-saving heart surgeries on heart kids that would not have the opportunty to have these surgeries. All free of charge! I hope one day to be one of those nurses with them!

1 comment:

Nancy Jensen said...: That's awesome! I'm so glad that they are going to review and talk about the conflicting stories.

I had no idea that Dr. Teadori and Dr. Barber & 2 nurses had gone to Ethiopia to perform heart surgeries. What an amazing story! Thanks for sharing.; October 6, 2012 at 6:40 PM

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Arianna Marie

Arianna was born on 11/26/06. 4 weeks premature, and weighing 4lbs 13ozs. She was born with a congenital heart defect called Tetralogy of Fallot, which is actually 4 heart defects, and was later diagnosed with an ASD. She had open-heart surgery on 5/22/06. Her surgery was to patch the VSD, patch the ASD, widen her pulmonary artery, and attempt to fix her pulmonary valve. They created a man-made pulmonary valve out of myocardium to avoid a conduit placement, which would require multiple surgeries. On September 21st, 2012 we got the news that Arianna's right ventricle pressures are too high and she needs a pulmonary valve placed. When we meet with the surgeon we found out she also has pulmonary branch stenosis and a possible defect in her tricuspid valve. He will be addressing all of these issues at the time of surgery. On October 18th, 2012, Arianna had her 2nd open-heart surgery.

At 5 weeks old she was diagnosed with a genetic disorder called 22q11.2 Deletion Syndrome, which is caused by a deletion of a small segment of the long arm of chromosome 22. This disorder has many names such as 22q Deletion syndrome, Velo-Cardio-Facial syndrome, DiGeorge syndrome, Shprintzen syndrome, and Catch 22. So far there has been more than 180 anomalies reported in this syndrome, which is highly variable from person to person and no individual has all of the anomalies. Arianna has overcome many obstacles and we find peace in knowing that God is working miracles in her life. We set this site up to share our family journey. We know that God has a special plan for Arianna and our family!

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Saturday, October 6, 2012

Love our Team!

1 comment: